2008
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Advocacy on issues:
• Radiotherapy under-dosing incident at the Royal Adelaide Hospital
•Chemotherapy over-dosing at the Womens and Childrens Hospital
• Coordinated, holistic and multi-disciplinary team approach to cancer care, plus:
Raise awareness of consumer interest in ‘integrated medicine’ with complementary therapies; and Need for services including support after treatment has ended, support for carers after the patient has passed away, legal/financial counselling (eg powers of attorney, wills, superannuation), sexual/sexuality issues, help for patients with a young family etc.
Ongoing representation on:
• SA Cancer Clinical Network (CCN) Steering committee and the following subcommittees/working groups:
Optimising Cancer Care subcommittee
Cancer Information subcommittee
Infrastructure subcommittee
Radiation Oncology subcommittee
Radiotherapy Performance Indicators working group,
Complementary Therapies working group (chaired by CVSA Exec)
• SA Quality and Safety Council in Healthcare Consumer Advisory Committee.
• Cancer Voices Australia (CVA) Board.
• Cancer Australia National Consumer Advisory Committee.
• EdCAN Cancer Nurses Education Project.
• CareSearch Palliative Care Reference Group
Forums/Meetings/Workshops attended:
• Clinical Oncology Society of Australia - Consumer Forum (Nov 08, Sydney).
• Consumer Health Forum and Medicines Australia advocacy workshop for health consumer organisations (Nov 08, Canberra).
• National Institute of Complementary Medicine – Forum on information production, coordination, dissemination (Sep 08, Sydney).
• Workshop- Improving the availability, access and quality of cancer information for clinicians and consumers (July 08, Adelaide).
• CaNET National Cancer Network workshops.
Presentations:
Southern Fleurieu Cancer Group;
Cancer Council SA Cancer Support Group Leaders.
Media: (see links)
Radiotherapy incident: Newspapers, TV news, ABC Stateline program, radio.
Chemotherapy dosing incident: Newspapers, radio.
CVSA cycling for cancer awareness: newspapers.
Documents:
CVSA Strategic Plan and Work Plan 2008-2010 (Feb 08)
CVSA Policies: (Feb 08) Actions Policy, Information Management Policy, News-Media and Speaker Policy, Representatives on Committees Policy, Rules of Incorporation,Website Content Policy.
Radiotherapy benchmarks for cancer treatments, from the consumers perspective. (to CCN, Apr 08)
Integrative oncology and Complementary therapies for cancer care in Australia and overseas - CVSA background paper (to CCN, Jun 08).
Cancer Advocacy Groups and Pharma Funding: CVSA discussion paper (to CVA, Jun 08).
RAH cancer patient’s Radiotherapy dosing errors – CVSA concerns (to Dr Tony Sherbon, July 08).
RAH radiotherapy incident – CVSA concerns (to Prof Delaney, Aug 08).
Newsletters:
CVSA Raising a Voice Bulletin (Jun, Aug, Dec 08)
Regular CVSA updates for Cancer Voices Australia newsletters and ‘Mosaic’, The Cancer Council SA Support Groups newsletter. |
