Website links
Cancer types and treatments
The sites listed below each provide information about many types of cancer, symptoms, treatments, clinical trials, coping with cancer, screening and diagnosing cancer. (The funding source for these sites is shown in brackets).- The Cancer Council SA provides information and links to local services, counselling and support groups (charity organisation).
- Better Health Channel http://www.betterhealth.vic.gov.au/bhcv2/bhcarticles.nsf/pages/dc_cancer?open Health and medical information for consumers, quality assured by the Victorian government (Australian government).
- HealthInsite is an Australian government initiative to provide reliable health information (Australian government).
- American National Cancer Institute is a comprehensive site reflecting the Institutes role in coordinating cancer research programs on cancer prevention, detection, diagnosis, treatment, rehabilitation, and control (US government).
- "People Living with Cancer" has oncologist approved cancer information from the American Society of Clinical Oncology & The ASCO Foundation (US non profit professional organisation representing physicians who treat people with cancer)
- American Cancer Society provides comprehensive information for consumers and health professionals (charity organisation).
- National Comprehensive Cancer Network – provides patient information in alliance with the American Cancer Society (http://www.nccn.org/patients/default.asp) (Clinical professionals from 21 US cancer centres contribute to this not-for-profit alliance)
- CancerHelp UK http://www.cancerhelp.org.uk/ provides detailed patient information about specific cancers, symptoms, treatments, side effects and clinical trials (check out the 'Site Map'). It is part of Cancer Research UK http://www.cancerresearchuk.org/ a leading charity in the UK dedicated to cancer research. Other sections of the Cancer Research UK site are: Cancer & Research, Cancer Statistics, Cancer prevention (charity organisation).
- CancerBackUp UK Cancerbackup's mission is informing, understanding, supporting ..to give cancer patients and their families the up-to-date information, practical advice and support they need to reduce the fear and uncertainty of cancer (charity organisation).
- The NSW Cancer Institute has detailed information about standard cancer treatments used in Australia (including side effects) for patients, carers and health professionals http://www.cancerinstitute.org.au/cancer_inst/ciscat.html .
- The National Comprehensive Cancer Network site has Treatment Guidelines for Clinicians and pathways for care of cancers at different sites and stages. Be aware that these care pathways have been prepared by the American Cancer Society and there may be some differences in availability of treatments and the Australian clinical guidelines. Consumer friendly information for patients is being updated and will available in early 2009.
- The
Oncology Nursing Society (ONS) of America have a series of
excellent “Putting Evidence into Practice” (PEP) Resources
which provide recommendations for practice and include cards,
definitions, evidence tables, and references.
- Putting Evidence Into Practice®: Evidence-Based Interventions for Fatigue During and Following Cancer and Its Treatment
- Putting Evidence Into Practice®: Evidence-Based Interventions to Prevent, Manage, and Treat Chemotherapy-Induced Nausea and Vomiting
- Putting Evidence Into Practice®: Prevention of Infection Putting Evidence Into Practice®: Evidence-Based Interventions for Sleep-Wake Disturbances
- Putting Evidence Into Practice®: Evidence-Based Interventions for the Prevention and Management of Constipation in Patients With Cancer
- Putting Evidence Into Practice®: Interventions for Depression
- Putting Evidence Into Practice®: Evidence-Based Interventions for Cancer-Related Dyspnea
- Putting Evidence Into Practice®: Evidence-Based Interventions for the Management of Oral Mucositis
- Putting Evidence Into Practice®: Evidence-Based Interventions for Chemotherapy-Induced Peripheral Neuropathy
- Putting Evidence Into Practice®: Evidence-Based Interventions for Anxiety
- Putting Evidence Into Practice®: Nursing Assessment and Interventions to Reduce Family Caregiver Strain and Burden
Understanding tests and results
- Lab Tests Online is an Australian 'Quality use of Pathology' initiative (not only for cancer) (Example: Select Conditions & Diseases 'Prostate Cancer')
- MyBiopsy by the College of American Pathologists has information about cancer tests. http://www.cap.org/apps/docs/reference/myBiopsy/index2.html
- Cancer World Media Resources links to sites that may be useful aids for understanding medical terminology and for definitions. The Cancer Media Service (CMS) is a resource for journalists operated by the European School of Oncology (ESO). The CMS aims to improve the quality of cancer journalism by helping to put news about cancer in context and explaining the science behind the stories.
- Understanding Complementary Therapies – a guide for people with cancer, their families and friends is an on-line booklet by the Cancer Council of Australia that provides an excellent introduction to therapies that may improve your treatment and care. Complementary therapies and cancer factsheets are also provided by the Cancer Council of Australia.
- Cancer Care Centre at Unley, South Australia provides complementary therapies, support, services and a library of cancer information, books, videos, CDs.
- Better Health Channel, Victoria has general information about commonly used complementary therapies, and PDF Fact Sheets.
- The Memorial Sloan Kettering Cancer Centre is a leading US cancer research centre. The Integrative Medicine program is headed by Dr Barrie Cassileth, a presenter at the Cancer Voices SA consumer Forum in Nov 2007. A useful section of the website has detailed information about Supplements, Herbs and Other Products – to help you find out which ones have proven benefits as complementary cancer treatments.
- American National Center for Complementary and Alternative Medicine. NCCAM is dedicated to exploring complementary and alternative healing practices in the context of rigorous science, training complementary and alternative medicine (CAM) researchers, and disseminating authoritative information to the public and professionals.
- Inspire Health has a Research Information System and Research Updates which presents the latest in integrative cancer care research relevant to cancer and integrative medicine. The resources listed at this site have been identified by physicians and the information it provides is linked to the abstract of the article published in PubMed.
- 'Cancer – how are you travelling' is a booklet about the emotional and social impact of cancer.
- Cancer Survival Toolbox has sections on.communicating, finding info, making decisions, caring for the caregiver, living beyond cancer
- 'Life after cancer, A guide for cancer survivors' is a booklet from The Cancer Council Victoria
- The Lance Armstrong Foundation (LAF) “unites people through programs and experiences to empower cancer survivors to live life on their own terms and to raise awareness and funds for the fight against cancer. The LAF focuses on cancer prevention, access to screening and care, research and quality of life for cancer survivors”.
- Nutrition and Physical Activity During and After Cancer Treatment: An American Cancer Society Guide for Informed Choices
- Exercise guidelines for cancer patients – in the SA Cancer Support Groups Newsletter ‘Mosaic’ May 2007 issue p2-3. Go to the Mosaic articles at the bottom of this webpage -
- Breast
Cancer Network Australia can provide useful resource packs –
- My Journey Kit, for women newly diagnosed with breast cancer The kit has been put together in consultation with women who have experienced breast cancer and includes an information guide and personal record. This kit also includes the NBCC book ‘A Guide to Women with Early Breast Cancer”, some of BCNA’s brochures, a state based resource sheet and a copy of our free quarterly magazine The Beacon. BCNA distributes this kit free of charge to women diagnosed with early breast cancer in the last 12 months.
- Hopes & Hurdles, for women living with secondary breast cancer. Women shared their experiences, practical tips, and strategies to get through tough times and their gems of wisdom. The Pack is includes a range of booklets, brochures, and CDs, including a CD for men whose partners have advanced breast cancer.
- Cancer Support Groups run by The Cancer Council South Australia.
- Cancer Research UK has
information at ‘Understanding
Clinical Trials’.
- A Guide to Clinical Trials for Cancer Patients is a brochure to help you make an informed decision about becoming involved in clinical trials. http://ecog.dfci.harvard.edu/general/clinguide.html
- The American National Cancer Institute provides information
Search for cancer trials: Be aware that websites based overseas may describe Cancer Trials that do not have any recruitment centres in Australia.
- Australian Clinical Trials Registry (ANZCTR) is an on-line register of clinical trials being undertaken in Australia and New Zealand and involving Australian/New Zealand researchers or participants. The ANZCTR includes trials across the therapeutic areas spectrum of pharmaceuticals, surgical procedures, preventive measures, lifestyle, devices, treatment and rehabilitation strategies and complementary therapies. (Note: not only for cancer trials).
- American National Cancer Institute (NCI) Clinical Trials Registry has detailed information about cancer trials sponsored by the NCI, pharmaceutical companies, medical centers, and other groups from around the world.
- Cancer Research UK ‘Find a Clinical Trial’ has very consumer-friendly information about cancer trials available in the UK.
- CancerBackUp UK include details of cancer trials by the NCRN (National Cancer Research Network), Cancer Research UK and the EORTC (European Organisation for Research and Treatment of Cancer). Trials run by the pharmaceutical industry are also included.
- American National Institute of Health clinical trials website has a comprehensive listing of trials conducted in the United States and around the world, (NB not only cancer trials).
- Adolescents and young adults with cancer Canteen (with links to other good teen and young peoples sites)
- Carers Caring for the Caregiver
- Culturally and linguistically diverse Multi-lingual cancer resources are provided by The Cancer Council South Australia (eg Arabic, Bosnian, Chinese, …Italian, Greek, … Russian, Serbian, Somali, Spanish, Turkish, Vietnamese)
- Gay or Lesbian 'It's a real bugger isn't it dear? - Stories of different sexuality and cancer' This booklet details the personal journeys, through stories and poems, of GLBTIQ people who have had cancer.
- Rural and Remote Patient Assistance Transport Scheme (PATS). The South Australian Patient Assistance Transport Scheme (PATS) provides some financial reimbursement to country patients and approved escorts with the cost of travel and accommodation when they are required to travel over 100 kilometres (each way) to receive specialist medical treatment that is not available at their nearest centre.
- CareSearch is an evidence-based resource for palliative care professionals, patients, carers and the general community.
- Palliative Care Council SA is a valuable information resource on palliative care services provided in South Australia and nationally.
- Palliative Care Australia has launched a new national online directory of palliative care services. Visitors to the website will be able to type in the postcode where they live and see the contact details for the service/s that cover that location.
- Grief Link is a South Australian site (see Topics: Cancer, or Coping with Grief, or Helping the bereaved)
- Medicare
Online Service for Consumers Medicare Australia has launched a secure online service for
consumers that allows them to view their Medicare Safety Net
balance, Medicare benefit tax statement, organ donor registration
details and children’s immunisation history, view and update some
of their Medicare personal details, and request a duplicate or
replacement Medicare card along with some transactions and
enquiries.
All holders of a Medicare card who are over 13 years old and currently living in Australia can register for the online services - Superannuation
Australian Prudential Regulation Authority - regarding early release of superannuation http://www.apra.gov.au/Superannuation/Early-Release-of-Superannuation-Benefits.cfm
- Cancer Voices Australia is lobbying the government to make changes to enable terminally ill cancer patients to access superannuation payouts before they die.
- Cost of Cancer in NSW (PDF report, 2007)
- Workplace
The Cancer Council WA Cancer in the Workplace Project: Report on Consultations with Managers and Employees (2006, Report 060123)
- Cancer Voices Australia is a national network providing a forum for people in Australia affected by cancer. Through our network of state cancer voices we share issues, ideas and experiences that are common across all cancer types.
- Health Consumers Alliance of South Australia is the not for profit, peak community organisation for health consumers using SA health services.
- Consumers Health Forum of Australia is the national voice for health consumers. It helps shape Australia’s health system by representing and involving consumers in health policy and program development, and is an independent member-based non-government organisation for health consumers.
- American National Coalition for Cancer Survivorship is a survivor-led cancer advocacy organization, advocating for quality cancer care for all Americans and empowering cancer survivors. NCCS believes in evidence-based advocacy for systemic changes at the federal level in how the nation researches, regulates, finances, and delivers quality cancer care.
- Lance Armstrong Foundation Advocacy
- Health and Community Services Complaints Commissioner The HCSCC helps people – service users, carers and service providers – resolve complaints about health and community services, when a direct approach to the service provider is either unreasonable, or has not succeeded.
- Achieving best practice cancer care, A guide for implementing multidisciplinary care (Victorian Government Cancer Initiative
- Multidisciplinary cancer care (National Breast and Ovarian Cancer Centre)
- Cancer Australia Cancer Australia is a national government agency, working to reduce the impact of cancer on all Australians. It aims to work in partnership with consumers, health professionals, cancer organisations, researchers and governments, to improve outcomes for all people affected by cancer and particularly for those people whose survival rates or cancer experiences are poorer. This includes Aboriginal and Torres Strait Islander peoples, people living in rural and regional areas, people from culturally and linguistically diverse backgrounds and people who are socio-economically disadvantaged.
- The Cancer Council Australia is Australia's peak national non-government cancer control organisation, The Cancer Council Australia advises the Australian Government and other bodies on practices and policies to help prevent, detect and treat cancer. We also advocate for the rights of cancer patients for best treatment and supportive care.
- The Cancer Council SA has links to latest reports by the Australian Institute of Health and Welfare and SA Cancer Registry
- Cancer in Australia 2006 Report (published July 2007) http://www.aihw.gov.au/publications/index.cfm/title/10476
- UK Cancer Research CancerStats section contains the latest cancer statistics and information on the causes, diagnosis, treatment, screening and molecular biology and genetics of cancer.
- US National Cancer Institute Cancer Statistics for ‘Finding cancer statistics’ and ‘Understanding Cancer Statistics’.













